Now we just wait, recover, restrict activity, then for a few months be "normal", then finally finish up this nightmarish year of surgeries with surgery #4 for his ears and surgery #5 total in a 12 month period (he had his palate redone in Boston in December of 2011). Lord willing he'll finish his surgeries for the cholesteatoma they found in his ears in December of 2012!
Wow... what a year! This surgery has so far been the easiest... shorter... 2 1/2 hours... less throwing up afterwards and just a more alert, happier kid.
Now his mom on the other hand is throwing herself a big ol' pitty party. I know, I know, many other kiddos have it much worse. At least he's not fighting for his life..... though I think I'm fighting for mine. Man....... I've been grumpy this week. I hope to be coming out of the funk soon. It helps the little emperor just came up and gave me a hug and a kiss.
He just "made" his bed, that is really our bed. He sleeps with me until he doesn't need pain meds at night anymore. Here's the cutie picture of him and his animals in our bed this morning.
Even though he is so cute sporting anything.... I'm quite tired of those crazy head bandages, changing out gauze pads, giving medicines, and reminding him not to run, jump, or horseplay. I am grateful however that I can lay off a little on the restrictions this go around. Just his normal way of getting off his bed, walking, and moving downstairs will be fine! Josh tends to have a certain bounce/ run/ fast movement to anything he does and I won't need to nag him about that this time :)
3 comments:
glad he is doing well and nice to have "stalked" you all yesterday
jennifer
Keeping you in my prayers. In my opinion, any time a child has more than one surgery a year, no matter how serious, it is very draining on the child and the mama. I've been there. I understand how you feel. Hoping the surgeries are all successful and come to an end soon for your sweet guy and for you!
Oh Angie, I'm right there with you. Jameson just had surgery last Wednesday and Sallie is scheduled for open-heart a week from today.
As for the multiple surgeries related to cl/cp stuff, yeah, we were clueless on that. Not saying you were, but this need is not easy on these kids or us, especially with all of the surgeries.
Jameson had something similar on his head when his BAHA abutment was placed last December.
His surgeon told us 12 WEEKS (!!!) of no rough play, no swinging, running, etc. WHAT?! My sister asked me to ask the surgeon where we needed to go to get the straightjacket LOL! (Well, actually, that might actually work. ;)
I wish we lived a bit closer. GA and TN are in the same region, but if you all lived down the road I'd come over and join your funk next time! Misery loves company huh?!
Glad you are on the other side of another surgery. HUGS!
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